We thought we had Carly's pain under control when I posted here last night, but shortly after posting, it returned. By 3am the pain escalated so far that she actually stopped breathing and the PICU doctors rushed in and used an oxygen mask to give her some positive pressure. Thankfully that worked almost immediately. There are no words to describe how scary that was.
Carly's abdominal pain has continued today and there is still no clear diagnosis. The current thinking is that it is pancreatitis or a very strong viral infection of her gastro-intestinal system. The treatment for either of those is the same: rest your belly (no eating), give IV fluids and manage pain with a variety of medications. There are a few other possible diagnoses, but those two are the best bet at this time. We think we finally have the right combination of medications to help Carly with the pain. Her feedings will be held until Monday, when they will be slowly introduced again. For now we will try to enjoy our view of San Francisco, keep the healing tunes playing, and give every ounce of energy that we have to helping Carly move on to better things.
Love, Brad
14 comments:
Glad to hear that you think they have found the right combination of medicines. I will continue to send positive energy to figure this out and to be able to keep Carly out of pain. Much love to you all.
Ugh!!! Can't imagine what that was like. We will continue to pray for Carly, you and christa, the physicians and all the cargivers at the hospital
Thinking of you really really hard...
Love, Cécile
Holding sweet Carly close and sending love.
Damm.....I guess you just never know what suprises are waiting out there. I hope things are stabilized and you can get some sleep tonight and most importantly that Carly gets bck on her road to recovery.
what a terrible night, I'm so sorry to hear that. sounds like the doctors you have are good at what they do, though, which must be assuring. good to know the pain medication is working and I hope resting the belly does the trick. you and Christa are such wonderful parents -- Carly will surely thank you for it. keeping you three in our thoughts and prayers,
Sheila and Keith
We're sending great thoughts and relaxation your way, sounds as if you need it. What a terrifying experience....we love you all a ton, and hope today is better.
xxoo
Becca and Brian
Hello,
I found your blog from the Patpit yahoo group. I see that you are in SanFrancisco. We don't live to far from there. About an hour. Who is your endo? My little girl is 4 and has panhpopituitarism, but she was born with it whit no know cause. I see that she is in the hospital right now and my thoughts and prayers are with you and your family. Carolyn McGowan
www.caringbridge.org/visit/keirstenmcgowan
Sending good vibes to Carly's tummy and you all. Hoping for a restful recovery this weekend. :) Hang in there Carly's mom & dad! xo Nuwie
oh no! i hate this news so much. sending you so many thoughts and positive vibes and love and everything you all need over there to just get through this and get your little baby home where you all belong. glad you have the beautiful view, and maybe you'll have a hawk sighting this weekend?
B,C,and c,
We are thinking about the three of you during this most challenging hospitalization.
We hope that these painful episodes of Carly's can end as quickly as they started.
Sending love and patience from Ann Arbor.
J,W,K,T,MC
Here from Elm City Dad to send some much needed love. Your little Carly is in my thoughts.
Sally
Oh goodness - how scary. :(
I'm hopeful this will be resolved soon and you all can go back home. I'm sending lots of healing love and energy your way.
XOXO
Bless Carly, Bless the wonderful doctors and bless you and Christa. She has the strongest teams working for her at every angle. The love and prayers are strong and steady from our end. May comfortable, peaceful nights be in your immediate future.
We love you guys.
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