Today marked a few big milestones for Carly. First, she cracked a little smile when Christa squeezed one of her favorite squeaky toys. It may have been a small smile, but after a 25 day hiatus from smiling we were thrilled to see it again. The second milestone is that she was just taken off of IV fluids for the first time since we arrived and she is now getting all of her fluids and nutrition from nursing. This is such a long way from last week, and very encouraging for a discharge home in the near future. The last milestone is that we got the official radiology report from last Friday's MRI and there is no visible tumor recurrence. Eighty-seven days of tumor free living and counting!
The last major issue is that Carly continues to have intense stomach pains any time she tries to poop. It is clearly excruciating for her and she turns blue and screams through the pain several times a day. We will likely push for an x-ray tomorrow that could help verify if the issue is residual barium from her diagnostic test last Tuesday or if there is a something else all together. If we can just get her through this last problem we should be able to put this latest chapter of "Life in the PICU" to rest.
Love, Brad
13 comments:
great news!!! so good to wake up to this. i hope this trend continues and you are home so soon.
love you guys-
Wishing for many more smiles for you! And HOORAY for 87 days of tumor free living and counting! Hopefully the barium issue is just that and that it passes soon, literally. So great to hear Carly's off the IV and nursing. The light at the end of the tunnel that leads to home is getting brighter! ((HUGS))
I hope you can get home soon and that Carly has a great day today!
Fantastic news. Sounds like home is just around the bend!
Love
Allie, Andy, Luke and Sophie
Okay, just one more obstacle to "pass". We're picturing that sweet little baby at home, in her garden and sharing more smiles. It's close. We can feel it!
Love to you all.
I can only imagine how sweet her smile is when it's there...no matter how small, it means so much. You're on the right path....more smiles and your own beds very soon!
Love,
Susan
Welcome home, Carly, Chrisa, and Brad!!
Very happy for this great news.
Love ya,
Robin
Such great news! Let's get sweet Carly past this one last hurdle, and I'm looking forward to seeing her next in her element back home. :)
So glad to hear you got a smile! We hope the stomach pains end soon and you can all go home finally.
Love, Jane, Chuck & sammy
Such great news! So glad to hear she's nursing and off the fluids! Keep up the good work, little girl!
YEAH! Lots of good thoughts heading your way...Kellie
Carly's smile can brighten anyone's day! So happy to hear she cracked a little smile, is nursing AND continues to live a tumor free life. :) Hoping that the stomach/pooping issue is resolved SOON...we all cannot WAIT to hear that you are home. It's going to be soon! Lots of love. xoxo
Wonderful wonderful wonderful! Love smiles and nursing and tumor-free living! sending you big hugs, lots of love and ongoing prayers to get you three home!
-- sheila and keith
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