Carly's day was better than yesterday mostly because we stayed up on her pain medications, helping to keep it from getting out of hand. The pain is definitely still there but fortunately there is something that we can do to help her through it. We are no closer to a diagnosis than we were yesterday, but like I said before, an official diagnosis is secondary to Carly getting better. Her ventricular drain that was inserted last Sunday was removed today because they have finally ruled out increased cranial pressure as the problem. This means that she continues to manage her CSF without a shunt. She is down to only seven tubes and wires which is certainly moving in the right direction.
I can't tell you how much Christa and I appreciate the love and support that is coming our way. We have spent a lot of time in the PICU over the last nine months, but this trip ranks at or near the top in terms of stress. The power of Team Carly (all of you) gives us a lot of strength and is keeping Carly safe as she heals.
Love, Brad
18 comments:
Continuing to send strength and love to all of you. Go carly go! Keep up the good fight. ((HUGS))
Sending you guys love, strength, and hugs! What an amazing family you guys are.
Over here from Elm City Dad.
Just wanted to let you know that I'm sending lots and lots of good pain management vibes to your lovely Carly.
Sending lots of love and healing energy Carly's direction! It must be horrible to see someone you love in so much pain and not be able to do anything about it. Hang tough friends!
Thinking of you guys so much! Sending love and healing thoughts.
Penny
My thoughts are with you and yours constantly. Bless you all for hanging tough through all of this guess work. All my love to Carly Grace.
She looks like such a sweet little girl. Came here from Elmcitymom. Feel better, Carly.
lots of love to all 3 of you. sending it today and every day.
glad to hear all our energy is helping! big hugs your way.
xo
brad & christa, we were on vacation, so we're just getting caught up on your blog. i was so sad to hear carly returned to the picu. we are thinking of you. please know you have the love & support of your family.
love,
laurel & guido
Good news from here on out, okay? Okay.
Proud members of Team Carly,
Mindy, Drew, Layla and Chloe
we love you guys and Carly is always in our thoughts as we send non-stop get-well vibes and prayers to your little sweetie.
Sheila and Keith
Sending you guys all the strength and get well vibes I've got. Much love!
-wolfgang norton
Vibes for Ms Carly! God bless your family! Jen White
B&C,
Tamara and I continue to send lots of love, healing, and prayers your way. We know you are strong and will get through this as a family. It kills us that you continue to go through this.
Much love,
Cassidy
I hope you had a restful Sunday and that Carly was pain free. Thinking of you and sending pain-free vibes to your little angel!
Love, Catherine
Hang in there Carly! Sending you happy, healing thoughts.
we love you guys and hate to hear that these recent days have been so darn tough. your strength is beyond admirable. love you,
Piper and Chris
Sent from Lani and Chris to send much love and healing vibes to Carly and strength to all three of you. xo
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