Monday, June 15, 2009

Let's Get The Show On The Road

Just before we went to bed last night, Christa and I made six wishes for each of the tiny stars above Carly’s head. I am not the expert on the rules and regulations of wishes, but I think it is ok to reveal your wish after it comes true. Both of us wished that her 10 hour diaphragm spasm (big hiccups) would end as our first wish and for our second wish we wanted Carly to have a peaceful night's rest. Both came true! The other four wishes can't be far behind, but I’m keeping those to myself.

Unfortunately Carly's day was not as pain-free as her night and we needed to give her each dose of pain medication as soon as it was allowed. The pain lasted for the majority of the day but the intensity was not as bad as yesterday morning so we are hopeful that this is a trend toward pain free days in the near future. There is still no diagnosis, although pancreatitis was basically ruled out. They have started Carly back on slow, 1 teaspoon (5 ml) per hour feedings through her NG tube and we will see over the night if her stomach can tolerate this.

There is a saying that Christa and I like: "Worry is a negative prayer." There is no better time to remember that than now when our days are full of things that could make us worry. Instead of going down that path, we try our best to focus on the positives of the day and send this energy to Carly. If you can all take a moment to visualize Carly as the perfect being that she is, and do so anytime that you may worry about her, I know it will help carry her through this ordeal.

Love, Brad

19 comments:

lala said...

My thoughts are with all of you. I'm wishing on a star......

Anne Cline

Dennis and Kathy said...

We are constantly thinking about you all and saying prayers throughout the day for you. Dennis and Kathy

Beth said...

Your East Coasat Groupies (and Aunt Patty in AZ) are on the job! The 3 of you are the epitomy of faith, hope, love and courage! All our thoughts, positive vibes and and prayers continue. Plus lots of hugs & kisses! Beth

Olivia said...

Me, too, visualizing her healthy, pain-free, happy, and at home with you both. Wishing you both the energy to stay strong, Olivia

karen said...

Being the biggest worry wart, I needed this reminder. Today, nothing but positive love and light for little Carly. I know she will turn the corner soon and put this ordeal behind her.
Love you all
xoxo

Anonymous said...

Love the positivity. We are sending healing, well-wishing vibes all day and visualizing a healthy and pain-free Carly. Above all, we are praying for and loving her from far away.
big cross-country hugs,
Sheila and Keith

Anonymous said...

I like this post and the last post (the beginning of the wishing stars) better than all the posts combined. certainly wishing for pain free days for carly, and feel confident these will come. you three are incredible, teaching us lessons about life during a very stressful time.
xo becca and brian

JerseyGirl said...

Your strength and positivity are inspiring. Continuing to send healing vibes Carly's way so she can move past this chapter and on to the next pain-free, healing chapter that waits for her. I want Carly back in her garden in the sunshine, back in your arms at home where she belongs. Oh and btw, I love the titles of the blogs! Hoping for your wishes to come true.

Lani said...

i love the stars and that it was gal who made them for you. i love your wishes and the positive energy that goes into doing that. and i love your little mantra. i need to remember that each and every day through yours and our journey in pain and helplessness.

i am thinking only healthy, pain free, thoughts for little carly. and wishing upon every star i see that she gets better and the 3 of you can go home to where you belong.

xo

Marybeth said...

I am right now visualizing a pain free, healthy, happy Carly. Thank you for sharing that saying, it rings very true to me. Sending you love and keeping the hope and positivity strong in my heart for you all.

Tooley said...

I am visualizing a happy pain free Carly wrapped in a healing glow.

Unknown said...

Brad and Christa - Your strength and positivity are an inspiration. Carly is in our prayers. I take a moment every once in a while to imagine her pain-free. If we can do more, please email at meghan@meghanoleary.com. I'd be happy to bring you a latte or a sandwich anytime. Or if it helps for someone to sit with Carly while you run home for a shower or a nap, I'd be happy to do that too. Much love to you all, Meghan

Gal said...

"If you can all take a moment to visualize Carly as the perfect being that she is, and do so anytime that you may worry about her, I know it will help carry her through this ordeal." Yes! Absolutely. When I close my eyes and visualize the perfect being Carly is, I see someone really beautiful and powerful. :)

Mindy said...

What great advice to share with all of us. Thank you for that.
Last night Layla included in her prayer for Carly, that she wants her to grow as tall as her.
Please send measurements.

Michele said...

Sending you all every positive pain-free thoughts!

Love you guys
Michele

bridget keenan mcelroy said...

When you wish upon a star
Makes no difference who you are
Anything your heart desires
Will come to you


If your heart is in your dream
No request is too extreme
When you wish upon a star
As dreamers do


Fate is kind
She brings to those who love
The sweet fulfillment of
Their secret longing


Like a bolt out of the blue
Fate steps in and sees you through
When you wish upon a star
Your dreams come true

I know I'm showing my age but this song by Jiminy Cricket has always been a favorite. I will try my hardest not to worry and only visualize that little face with a huge smile.
love to you

Paige said...

When our son was sick, a friend of a friend wrote his name on a piece of tape and put it on the receiver of her phone, so that each time she answered the phone, she'd send a prayer to Cayden.

Like her, I have a bright pink post-it with "Carly" written on it next to my computer at work so that every time I see it, I'll send positive, peaceful vibes Carly's and your way. And because I'm on my computer most of the day, that should be a whole heap of positivity. xo

Unknown said...

Special prayers, thoughts and wishes are with you and your family Brad! Especially fierce hugs to all of you... hang in there!

Liz Michel

Anonymous said...

Can't stop thinking of you both and, of course, precious Carly. Going thru sf this weekend and hope I can stop by for a visit. Sending all of my love and positive energy your way. - Denise