Carly had a pretty restless night and we were up until 6am trying to help her get comfortable. Her discomfort wasn't nearly as intense as her worst episodes but she is clearly still not feeling great. In the late morning the intensity of her discomfort started to escalate and we were afraid it might get to the ten out of ten level that it has on four occasions here. With Christa rocking her and me patting her we were able to help a bit, but she finally needed extra medications which fortunately helped her to rest.
Every day we shake our heads in disbelief when we count up how many days we have been in here. We're up to seventeen days now which makes this our longest stay ever, and we still don't know what is hurting Carly. Tomorrow at 7:30am she is heading down to the operating room for an upper gastrointestinal endoscopy. Because she is so young she will be under general anesthesia as they explore down her mouth into her stomach and upper intestinal tract. The procedure is quick, taking less than an hour, and hopefully they can get a better idea as to what is causing Carly to hurt so much. Christa and I are both sensing that a turn for the better is coming Carly's way, hopefully that starts tonight and doesn't let up.
Love, Brad
15 comments:
YES, this procedure will find out what is going on and they will be able to treat her so she can move on and away from all this. Love to the three of you--you are all showing such AMAZING strength.
Sally
Good luck with the procedure. Let's hope you can find some answers and that most importantly, Carly's pain goes away.
Thinking of you guys!
- Cathy
Dear Ones,
Here I sit looking out at Douglas Lake at 7:00a.m. with tears running down my face after reading your Father's Day post. What a lovely picture of father Brad and beloved daughter Carly! A touching response from Grandfather Phil. Those Nelson men are very special! We are sending Douglas Lake love and healing thoughts to the California Nelsons for sweet Carly's recovery.
Aunt J. and Uncle H.
We hope today's procedure will provide some insight and will help to guide her continued healing.
Lots of hugs and kisses from Milwaukee-
Andy, Allie, Sophie and Luke
Sending positive vibes for the procedure today-hopefully it leads to insight on what is going on with Carly. Thanks for the updates. Your father's day post was so sweet. Thinking of the three of you.
sending you lots of good thoughts that they figure this damn thing out. you need to get home where you belong.
lots of love to you all xo
Dear Carly,
We hope your mystery pain can leave as quickly as it came. May you get some answers soon that will lead to your recovery. Sending lots of positive energy.
Love,
Jenny
May answers come soon, may they have quick solutions and bring pain free, worry free, hospital free days.
Layla and I were blowing kisses and whispering healing messages into them. We were blowing so hard that Layla said she could see things in her room moving. We were also wondering if you could see Carly's hair moving? If so, it was our healing kisses. We are sure Carly felt them.
It seems impossible that you've been in the hospital this long - I'm praying that today's procedure provides insight so that action can be taken to get you and Carly home as soon as possible. There's a (figurative) candle burning in the upstairs window for you, waiting for you to walk home up the hill very soon! Love, Ash
wishing you luck with this procedure and the hoping you get some answers soon. your father's day post was beautiful, Brad.
big hugs and good thoughts,
sheila and keith
I too am hoping that you will find some answers today and that Carly's pain will cease. Sending lots of love and peaceful, healing wishes to all of you...
Hoping everything went smoothly this morning, and that useful information was provided. Sending love for a peaceful day for Carly, and looking forward to visiting you guys this afternoon. Let me know if you need anything.
Brad...Your Father's Day post was so perfect and brings tears to my eyes when thinking about how much I missed Tyler* on Father's Day. I'll keep praying for his spirit on high to help Carly Grace with a miracle intercession ending her stomach pain...:-)...
Sending Love, Good Vibes, and Prayers Your way. -Jack*
Sending love and hoping, hoping, hoping for some answers, a painless Carly and rest for you both. Know this must be incredibly hard, we're all sending as much positive energy as we can.
xo
Becca and Brian
Brad,
Sending you lots of prayers. Carly is so precious....her pictures is adorable. I'm amazed as to all that you all have gone through....she is a fighter!!!. Thank you for sharing her site. I will be visiting often.
God Bless, bel
m/o of marco, dx Jan 2007, craniopharyngioma
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