Tuesday, June 9, 2009

The Right Direction

Carly was taken off the ventilator this morning and is now breathing on her own. It is great to see her cute little mouth and cheeks that were hidden behind tape and tubing. She is starting to move around a little bit but still slept for all but a few minutes today. She has now gone over two days without a pain episode and we are hopeful that as she becomes more alert and starts eating tomorrow she will continue to be pain free. There is still no clear diagnosis for her and there is a possibilty that we will go home without one. We aren't too concerned about the diagnosis as long as Carly feels good and stays that way. We can feel the love from all of you helplng to carry us through these trying days, thank you!

Love, Brad

11 comments:

Anonymous said...

You are all amazing.

Anonymous said...

We are so happy to hear that things are moving in the right direction and Carly has not had anymore painful episodes.
Love,
Allie, Andy, Sophie and Luke

JerseyGirl said...

Glad to hear the painful episodes seem to be over. It would be nice to know what was/is happening, but knowing that Carly is pain free is the best news. We were sending lots of positive vibes to Carly and strength to you guys from phish tour. ((HUGS))

Jeri said...

Thinking of you often and hoping to get to see sweet Carly very soon.
Take care,
Jeri

Anonymous said...

must be so hard to see her in pain, glad it seems to have passed. you've got a strong little girl there and a great medical team, and they have the best parental team possible in you and Christa so with some love and prayers from the rest of us, this will hopefully keep moving Carly forward in this right direction.

BIG HUGS,
sheila and keith

Lance said...

Great news and so happy to hear Carly is not in pain today! You're constantly in our thoughts.

Hugs and Love,
Lance and Mark

european vacation said...

Just checking in on you guys and saw the updates. Hope she is through this mess. Keeping you in my thoughts.
Kellie

Anonymous said...

Good to know that CGN is feeling a little better Brad. I'm hopeful that her pains have in fact been caused by 'normal' baby issues and that, while the docs can't quite pin point the cause of it, all the care and love that she has received will help them to go away and STAY away.

Take care bud.
-Marty

Marybeth said...

I'm so glad & grateful to hear that Carly is not in pain & is off the ventilator. My continued thoughts and prayers are heading your way for her full recovery. Lots of love to all of you!

Unknown said...

I am so glad that Carly hasn't had a painful episode in the past 2 days. I hope that she remains in comfort and that she continues to get healthier and stronger each day. You have such a strong family and I know that is such a driving force in helping her to heal.
Love, Stephanie

Anonymous said...

Hi Brad, Crista, and Carly - I'm relieved to check the site today and see that Carly is in recovery, after talking to Allie last night. Stay positive! My thoughts are with you,
Jena