The last twenty four hours have been pretty good. Carly was uncomfortable overnight with some stomach pains as the barium from her lower GI flouroscopy passed through her. We still managed to get at least 3 or 4 hours of sleep which was a big improvement over the last several nights. Her discomfort ended with a good barium diaper this morning and since then she has been pretty calm. She even got a sponge bath and lotion massage that she seemed to like.
The results from the fluoroscopy were normal, like every other test that she has had over the last two and a half weeks. We feel torn because it is great to hear that things look normal, but at the same time Carly is not feeling normal and we need to get to the bottom of this. The list of tests that they can still perform is getting pretty small at this point. We are meeting with the attending doctors from all of the involved specialities tomorrow afternoon to try and make some sense of all of the data that they have now collected, and make a plan for what to investigate next. We are also going to attempt to feed Carly again tomorrow, something that has not gone well the other three times we have tried. If she manages to eat without having extreme pain later in the day it is possible that whatever she has may have run its course. That is all that we are wishing for and dreaming about tonight.
Love, Brad
7 comments:
Dreaming with you...
I am praying tonight that Carly has turned a corner and will be able to be nourished by food tomorrow and that at the meeting of Drs., each will be able to listen as well as to speak and that it will lead to a positive outcome. Whatever happens, I know that we will move forward because I believe that God has a plan for carly.
Love, M
Just wanted to let you know we have lots of people sending Carly positive thoughts and prayers....
Hoping for a healthy tummy and big appetite for little C and some peace for Mom and Dad.
This is a nice goal for tonight.
It may be true there's no reason for all of this pain, but what is most certainly true is that you two of the most dedicated, loving parents in the world. carly is a very lucky girl to have her parents by her side during such troublesome times. my wish today is that she gets a breath of fresh air as soon as she can leave the hospital...
I love you! My mom works for the church in Erie, PA. She is having "the nice nuns" light candles for Carly. Stay Positive. I know it must be hard with the sleep deprivation. Hope all 3 of you get all the sleep and peace you deserve.
Anne Cline
thinking of you guys and hoping carly ate and felt better today! xoxo
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