Carly's belly CT scan last night did not show any issues with her intestines or bowel, meaning that there wasn't any type of mechanical interference causing her pain. This was good news in that she would not need surgery, but her diagnosis remains a big question. She had a great night and rested peacefully and we were hoping that her cycle of pain was over. Unfortunately around 8am an episode began again and it lasted over three hours. Her temperature got very high and we basically found ourselves in the same situation as yesterday morning. They tried using a variety of pain medications to help her but nothing seemed to do the trick. In the end they put her back on a ventilator which allowed them to use stronger medications without worrying about her maintaining her breathing.
The team here at UCSF is still pretty stumped as to what is happening with Carly. They ran many tests today for a variety of possibilities and besides some signs that indicate a possible virus or infection, everything is looking pretty normal. There is still a chance that Carly simply has a very strong intestinal virus that is causing a cascade of issues. If this is the case she will need to ride it out and it will resolve on its own. They will run several additional tests tonight and tomorrow to help them narrow the possibilities and hopefully we will have a clearer picture soon. We appreciate all of the support that you are sending our way, it is a big help for Christa, Carly and me.
Love,
Brad
14 comments:
Tomorrow is a new day. Rest well little Carly..
xoxo
We love you and we know that your medical team is working hard to understand what happening. We are sending positive thoughts and prayers.
Love
Allie, Andy, Luke, and Sophie
you continue to get incredible medical care...you'll figure this one out too. soon i hope. love bob
Hang in there guys. We are thinking about you and wishing Carly well.
Hugs!
Hang in there guys, we are thinking of you and loving you so much! Rest well little Carly!!
xoxo
Chris and Piper
Little Carly's a fighter! Stay positive...sounds like she's getting great care and attention from the docs.
Much love,
Robin
Continuing to send positive thoughts. We're hopeful today will prove to bring some answers.
love Becca and Brian
Best wishes, thinking of all of you. - Shanan and Josie
I hope that she is doing better today & continues to feel better & better. Sending love and positive healing thoughts to you!
Thinking about you and sending lots of love :)
We are sending lots of love and healing thoughts to Carly. Stay strong and keep thinking about a pain free future for that beautiful little girl
Pain free and many healing thoughts for Carly.
Xoxoxo julia
Hi Brad, I'm so sorry to hear that Carly is in pain - what a heart breaker. I sent you an email at work suggesting that you ask for a renal (kidney) ultrasound - her pain sounds eerily familiar. Just a suggestion, but at this point, you might as well try anything, right?
I hope to hear good news in the next day or two.
Maya
Praying for Carly and her doctors to see this through as quickly as possible so you guys can get back on the steady healing track she was on. Sending you all lots of love,
Sheila and Keith
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