Carly likes to make things interesting. She had another bad night, keeping Christa and I up most of the time with a lot of wincing and crying. Twice in the night she decided to cry so hard she held her breath and started to turn blue. She broke this trick out a few more times during the day, including once for my parents, once when a friend of ours was visiting, and once when the PICU attending doctor was evaluating her. That is more drama than a mom and dad need and we really hope she leaves this new trick at the hospital when we go home. We crammed in some sleep from 4-7am and then it was time for the various doctors to start checking in on her.Carly's day was a lot better. All of the lab results continue to come back negative and her diagnosis remains unknown. One of the residents here in the PICU said that although this is frustrating for everyone, it is also a good thing because they always start by testing for the most serious possibilities. Carly's stomach pain seemed to lessen today and they removed a line that was running into an artery in her right arm. That had to be annoying her and it is nice to have one less tube to deal with when picking her up. She had a slight 101 F (38.3 C) fever today but otherwise she seems like she may be starting to turn the corner. Tomorrow Christa will try to nurse her again to see if her stomach can handle milk and we're hopeful that she will continue to feel better by the minute. Carly looks peaceful in this photo I just took and we really hope that will last through the night.
Love, Brad
23 comments:
Wishing you all three a good night sleep... Thinking about you really hard, Cécile
It's so good to see a picture of Carly.I keep imaging her with lots of tubes. She looks so peaceful and I only hope she can turn the corner soon and have that pain go away for good.Lots of love and positive energy directed to your room at UCSF.May your remaining days there be few.
Love,
Jenny
I am sending much love and thoughts of peaceful, healthy, pain free days and nights for all of you. I am glad to hear Carly can nurse tomorrow, and I hope it goes well and sets you all on the path of leaving the pain and the hospital behind. (And the breath-holding!)
You can bet, Tutu and Papa will have a "talk" with Carly when she is older. That holding your breath is scary! B and C,your assurance, patience and constant vigil is a book in the making.
D
Good nursing vibes and pain free vibes coming for Carly today; keeping my fingers crossed she can handle the milk this time around. Sounds like you had a scary night. Let's hope the holding of the breath doesn't happen again! The picture of Carly is adorable. I love how she's snuggling w/her bunny. She can't talk yet but you can already tell she has a big heart. ((HUGS))
Sending you love and good thoughts from Colorado. Thinking about you guys often; your bravery and patience.
Love, jaimie (Lani's sister)
oh, that picture hugging the bunny is too precious. I know it hurts you to watch your little one in pain so our prayers are for all three of you to get some much deserved relief and pain-free rest. we are visualizing Carly turning the corner and reaching a full resolution to these painful episodes very soon.
sending you love, love, and more love,
sheila
Wishing for lots of peace and sweet dreams for Carly. She is looking quite cute in that photo, I hope she's finding some good comfort from her bear. Thinking of you all constantly. lots of love. Michelle
Sounds like CG is turning the corner and getting ready to get on with becoming the little angel she already is. Those stars are powerful, thankfully. I ran early this morning, and as the sun crested the mountain tops, I thought of CG new and positive and comfortable day. Here's me wishing the best for the team to get some sleep and CG to have a peaceful day. I care, bless you all.
Oh that is the most amazing picture. She really is one of the cutest things ever. She is definitely keeping you all on your toes, and you are so clearly SO there for her. Sending huge love and positive vibes for movement towards the exit doors of UCSF and the entrance to home! I'm here if you need anything, even more stars. :)
Sending love and visualizing a healthy, happy, peaceful Carly every day! If Matt & I can do anything at all to help, truly anything at all, please do not hesitate to let us know.
I want to cuddle in next to sweet Carly. She could not be cuter.
Glad for the good news and we'll be even happier when she's home and pain free. Visualizing that as I type, and always.
Love to you three!
Mindy
No more tricks little girl. Hope you 3 get to go home very very soon
xoxo
Carly looks so sweet in that picture and you two continue to live as an example of loving parents. She is in great hands and I'm sure that Carly has turned the corner for good, that answers will reveal themselves soon and the family will be able to heal at home shortly.
We continue to send our positive thoughts and prayers to Carly.
Love,
Keith
What a sweet picture of her! All of you are in our thoughts and we continue to send good, healthy and strong vibes to Carly! She is a tough little one and I feel strongly that you will be able to put this behind you soon and Carly will continue on the path to recovery! Love and ((HUGS)), Jennie and Jimmy
Just want to kiss that beautiful face. Visualizing a peaceful and pain free family of three. Keeping the faith.
aww, carly looks so cute! Lots of love and healing vibes her way. Love, Jane, Chuck & Sammy
that pic is the sweetest. i hope she stays as peaceful and continues on the upswing.
lots of love to you guys.
xo
Trust in the healing powers of the bunny rabbit! So snuggly.
Much love,
Robin
What a beautiful babe. Sending strong healing and positive vibes tonight.
What a beautiful little girl! My thought are with your family.
What a cute picture of her...despite the location and circumstances. Hugs hugs and more hugs.
- Cathy
Carly is just so precious. Just by looking at this picture, a person would have no idea the ordeal that this brave little girl is going through every day. I am praying that her pain subsides soon and that all three of you can get the well deserved rest that you need.
Love, Stephanie
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