Thursday, June 25, 2009

We're Getting Somewhere

Last night was a good one for Carly. She slept comfortably on her back for most of the night, a position that she loves at home but has refused for most of our time here. This morning she started getting cranky and spent most of the day crying out if someone wasn't holding her hands or patting her bottom. Thankfully we were relieved for a few hours by Carly's grandmothers.

The medical team meeting this afternoon didn't turn out to be that useful. The one thing we did learn from GI is that Carly's stomach biopsy indicated that she has gastritis. This can give intense abdominal pain and could very well be the issue that brought Carly to the hospital in the first place. Gastritis would not cause all of the symptoms that Carly has had, but it is possible that the pain from gastritis combined with the atypical anatomy in Carly's head as she heals from her last brain surgery could be behind all of these recent problems. She will have a brain MRI tomorrow and we will follow up with the neurology and neurosurgery team to see if any parts of her brain appear damaged. Hopefully a complete picture of what has been going on is not far away.

Love, Brad

8 comments:

Jane said...

So glad to hear she got some much needed rest and you may be getting closer to figuring this out. Keeping Carly and you guys in our thoughts.
Love, Jane, Chuck & Sammy

Anonymous said...

This is encouraging news for sure! So glad she got some rest - sleeping on her back and crankiness are all good signs.

Jen L.

Marybeth said...

So glad that she is feeling better & that you are at least getting a clue as to what has been going on. I have faith that she will continue to improve and you will all be home soon. Always sending healing thoughts your way...

Lani said...

glad you had a better night and that at least you got a few answers.

healing and home thoughts your way! xo

Anonymous said...

Good news.
xoxox
Becca and Brian

Heather and Seth said...

Just read that one of the symptoms of gastrisis is hiccups...would certainly explain the bountiful hiccup day. Hoping that this takes you one step closer to a healthy resolution and one day closer to home. Lots of love!

karen said...

It sounds like we are inching towards getting you guys home. If you ever need some additional arms to rock and pat bottoms, let us know
xoxo

sheila said...

sounds like good news, hope it keeps getting better. sweet little Carly is definetely tougher than any baby should ever have to be. sending you love always,
sheila and keith