Carly finally had the good night that we were all hoping she would have. She stirred a little, but was mostly quiet and we all slept as well as a family of three can in a small PICU room full of flashing lights and intermittent alarms. The sweet taste of sleep left Christa and I both wanting more.
Carly had a giant thirty minute outburst to start the day, but since then she has been very quiet and rested peacefully for almost the entire day. She never roused enough to try to nurse, so hopefully she can take that step tomorrow. It is looking more and more likely that this trip will end up being an unsolved mystery. A virus of some sort is the most likely candidate, but even that is not a sure thing. There is a chance we will be moved out of the PICU tomorrow if a room opens up, and the last thing that stands between us and home is getting Carly to eat without excessive stomach irritation. If she can do that, and we have a way to manage any remaining pain/discomfort that she may be having, then there is little left for the medical team to investigate. Carly would be allowed to recover in the comfort of home, only to return if her mystery illness "presents itself" which is medicalese for "gets worse and they finally figure out what is wrong." Christa and I are pretty sure that whatever it is will have run its course soon and Carly will be able to get back on her healing path. We're feeling all the love and support up here on the hill at UCSF. Thank you!
Love, Brad
10 comments:
Phew! I hope you guys get to go home SOON, so I can see Carly in her element. Sending huge love.
I am so glad she had a good night, you all needed on so badly! Best of luck getting home soon. I hope her next meal goes smoothly and without any tummy trouble!
Yay for rest and hopefully for moving out of the PICU soon. We're with you, thinking of you always and sending bright positive prayers your way.
lots and lots of love,
Sheila and Keith
What a difficult ordeal you three Nelsons have been going through. I hope and pray Carly has turned the corner on this unresolved mysterious stomach ailment...perhaps it's something as simple as growing pains?
Pat & I send love, best wishes and hopes for you to begin getting back to the improved health path Carly was on before this happened...:-)...
That is great news - the tides are turning. I can feel it!
Go Carly Go!
I would love to show up for the playroom on saturday and NOT find you in the PICU :)
Pulling for the big move to your own room a.s.a.p. Sending love and hugs.
Good to hear some news that you got a little relief today after everything this well. We are sending you extra love with wishes you three will be back home very soon.
Gigantic Hugs!
Matt and Cathy
glad to hear you got a little sleep and that carly had a better day. think of all three of you often.
sending lots of love - shuman
Yay! So great to hear that you guys are a step closer to bringing little Carly back home. Hang in there and Seattle sends its love!
Robin
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