Unexpected

Carly's fussiness took a turn for the worse overnight and she woke up around 4 am in a lot of pain. We noticed that she had a slight fever so we gave her a hydrocortisone shot, something that we have been instructed to do anytime she has a fever. By 6 am she stopped yelling but she seemed very out of it so we ran her up to the emergency room. When they checked her temperature during admission it was up to 106.1 F and her heart rate was up to 230 ( it is normally closer to 120.) A group of 15 or more doctors and nurses rushed into action and they were able to get her stabilized. She was admitted back into the PICU, an all too familiar place for all of us, and she is now resting.

At this point they have been able to rule out the most serious issues that could have led to this. Neurological issues related to her resected tumor and shunt are not the culprit this time, and it is looking like it is probably related to some type of GI issue. She will have a stomach CT-scan this evening to see if there are any intestinal complications, otherwise it could possibly be a stomach virus that combined with her panhypopituitarism pushed her body too hard. It is a relief to see her feeling so much better already, and we’re hopeful that she will be able to get out of here in just a few days.

Love, Brad