Carly's blood labs looked more stable than expected, so we are holding off on the chest port for now. Her platelet count did go down again but not as quickly as it would have if she were not producing any on her own, so it is a good sign that her bone morrow is doing some work. The full biopsy results are still pending and Carly will have another blood lab on Monday to see how she is progressing.
Carly started to show some signs yesterday that we have seen before when her shunt has started to fail. She is uncomfortable and rocking her head a lot and yesterday she wasn't very interested in eating. We were afraid that the night would be worse and that we may have to go in today for a shunt study, but she had a good nights sleep and is eating pretty well this morning. She is still very uncomfortable, but we will keep a close eye on her and hold off on the shunt study for now.
Love, Brad
7 comments:
There's always something positive in what we get to hear. Let's hope to continue to hear more and more. You have such a great understanding of how Carly is feeling and the signs she is giving you. (Little smartie.) Here's to more good test results, more restful nights, and more smiles.
Big love,
Glad to hear that Carly's labs are more stable.She continues to be quite the mystery, defying all standard medical predictions.
Let's hope her little head can get feeling better soon!
Sending lots of love your way,
W,J,K,T,MC
We're sending smiles and hugs to all 3 of you! XOXO
Some good results in there for sure. Sending positive thoughts to you all. Envisioning continued improvement ahead.
Matt
Hang in there you guys. We're thinking of ya and sending postive thoughs.
K&K
I hope that Carly felt better over the weekend and that she is feeling more comfortable today. Lots to love to the three of you...
C'mon bone marrow! Do your job! I'm so hoping against a faulty shunt. No faulty shunts no faulty shunts no faulty shunts STOP! Sending Jersey love. ((HUGS))
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