Carly’s blood counts looked a lot better today after her transfusion, enough so that they were willing to let us go home. I did not expect that we would be discharged this soon, but the hematology team thought that we could care for Carly at home while we wait to see how her body responds over the coming days. Carly will need to have her blood checked on Monday and if her cells are deteriorating quickly we will be admitted back to the hospital, but the time will be a lot more restorative for all of us at home.
We are planning to have a chest port placed in Carly at some point this week when pediatric surgery has available OR time. The port will be a small bump under her skin on her chest and it will provide a spot to draw blood and administer fluids, blood products and medications when needed. There have been so many problems getting IV access in Carly over the last year that this will be a big help, and should she need many blood transfusions over the coming weeks the port will make the process much easier on Carly. It always feel great to get home, and we can feel the support of Team Carly lifting us up.
Love, Brad
5 comments:
Happy Easter to sweet Carly. I'm glad she'll be spending it at her own home .....napping with all her ltttle stuffed friends. Peace and quiet.
Great news to hear you are home. Happy Easter, we hope the easter bunny made a stop for Carly and that you'll have a relaxing day at home. Also sounds like the chest port will be a welcome and really positive solution.
xo Becca and Brian
sending heaps of love to you guys!!! so glad you that you are home. love, lindsay
Happy Easter to Team Carly! Lots of love and hugs through another round of questions and hopefully quick and postive answers and results!
Great news! Happy Easter and happy birthday Brad.
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