Keep It Flowing

There haven't been too many changes over the last week. The best news is that Carly's cell counts have stayed pretty stable since her platelet transfusion last Wednesday. A check today showed that both her red and white blood cell counts have gone up, and although her platelet count has gone down a bit it hasn't been a rapid drop. The shunt tap last Wednesday showed that the protein content in Carly's CSF has not gone down over the last few weeks, and it could take several months to normalize. Unfortunately one potential complication from high CSF protein levels is shunt blockage. Carly has continued to be pretty uncomfortable over the last week, and the signs look a little bit like those that we have seen with previous shunt failures. We will be in contact with Dr. Gupta over the next few days to determine if a shunt function study is needed, and if her symptoms worsen he may opt for a shunt revision surgery without the study. Through it all Carly remains a sweet and adorable little fighter.

Love, Brad