Carly has been a bit uncomfortable over the last few days, but she has been able to steer clear of the hospital for now. Her labs on Monday showed that her platelet levels are slowly going down again, but not as quickly as the hematology team thought possible. Carly will have another check on Friday and if the cell levels are deteriorating quickly she will have surgery that afternoon to place the chest port. If the levels have stabilized we may put that surgery on hold.
We met with the endocrinology team today for Carly's one year tumor free check-up and to discuss growth hormone replacement. Based on Carly's last MRI Dr. Lustig is comfortable beginning this treatment, but he wants to wait until Carly's recent blood issues have settled out. It may take a few months, but we should be able to start her growth hormone replacement shortly. Thank you for keeping Carly in your thoughts and surrounded by healing energy.
Love, Brad
8 comments:
Go Carly!
I'll be hoping that the blood issue gets figured out sooner rather than later so that carly can back on track with tumor free living - great news about being able to start the growth hormones! Sending lots of love every day.
Sending lots of love and healing vibes to sweet Carly and her incredible parents.
Good news, keep up the great work Team Carly. Will be routing for you!
Love, Becca and Brian
So if she's at home, it sounds good to me. I'm very excited for you all and the promises of the new hormone treatment. Thank you for keeping us informed. All the love to you three.
Thinking of you guys! Glad you're home...
Looking forward to seeing you guys for the walk on May 1st.
hugs,
Cathy
Thinking lots about you all. Sending my love your way.
Thinking lots about you all. Sending my love your way.
thinking about Carly today, hoping that the blood issues are sorted out so she can start her growth harmone treatment soon. Sending lots of love and healing vibes.
love,
sheila and keith
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