The UCSF Dash

It looks like another good run outside of the hospital has come to an end. Carly has not been feeling great the last few days, acting more agitated than usual. Christa spent seven hours at urgent care with her on Monday as they ran multiple tests that didn't reveal any problem. After a follow up appointment with endocrinology yesterday we were told to try and get Carly's hydration up over the next few days. Unfortunately Carly decided that she didn't want to eat or drink anymore. After several attempts through the night it became clear that we had to come up to the hospital this morning.

Before we came up today Carly took a turn for the worse and we literally ran her up to the emergency room. She was in pretty critical condition when we arrived and there was a lot of commotion to get her stabilized but she was looking a lot better after a few hours. We are now up in the PICU (a familiar place to us) and Carly is doing pretty well. She is still agitated and not very interested in eating, but she looks much more like herself. A chest x-ray indicated that she may have bacterial pneumonia which they have already started treating with antibiotics as a precaution. Tomorrow she will have a follow up x-ray to see if the area of concern still looks like pneumonia. They are also monitoring the function of her shunt to see if increased cranial pressure could be causing any of her discomfort. We hope to have a few more answers tomorrow, in the meantime we are filling the hospital room with Carly's favorite tunes and a lot of healing energy.

Love, Brad