Carly didn't have a great night last night. She was really uncomfortable and agitated and it was clear to Christa and I that she was suffering from high intracranial pressure. We probably each got around 45 minutes of sleep, but we were able to help Carly get through the night by holding her hand and singing to her. Today was all about trying to find some answers. Carly had a few different studies and tests to check on both the pneumonia and her shunt function and a few hours ago all of the results were in. It does look like Carly has pneumonia, but it is unclear whether it is bacterial or viral. The treatment for the bacterial version is a seven day course of the IV antibiotics that Carly started yesterday and if it is viral all you can do is wait it out. They also found that there is a clot blocking the flow of Carly's shunt at the distal end, preventing it from draining her CSF as well as needed. Dr. Gupta was consulted and he will most likely operate on Carly tomorrow to replace the faulty parts of the shunt. They have not scheduled a specific time yet as they want to recheck all of Carly's vitals in the morning to verify that she is ready for a surgical procedure, but we should know pretty early in the day. Right now Carly is resting peacefully and we are hoping to get some much needed rest tonight. Thanks for your continued love and support, we can feel its warmth through the cold, rainy weather outside.
Love, Brad
15 comments:
I hope that tonight is peaceful and calm. Thinking about you constantly, and sending my love from Seattle.
Much love,
Robin
Yes, Carly, our minds and our hearts are with you and your wonderful parents. The cold and rain will be pierced by warmth and love.
Earl
Oh, Carly. Feel better, baby girl!
Dear Carly, Brad & Christa,
Your East Coast Groupies are working overtime in sending prayers, positive thoughts and love to the 3 of you!
God bless....love, Beth
Let us know if you need anything. I can come by anytime today or tomorrow, Kellie
Sending out lots of positive thoughts for a good procedure today. Please call if you need anything - I'll be at home all day.290-9354 or call Dan.
Jen
Sending all our love and warmth to you guys. She is always in our thoughts...
xoxo
Sending you three lots of love and hoping things go smoothly and that the antibiotics do the trick. Stay strong sweet little Carly, we are all rooting you on and sending prayers and healing vibes your way.
LOVE,
sheila and keith
Back East baking cookies with the ladies in my family. They all asked about you today, and are sending their love and prayers from Lancaster.
sending our love. and hoping that her rest will bring her strength to get through this. love you guys!
chris and piper
Hope the antibiotics take care of the pneumonia and the shunt surgery is easy and successful. What a beautiful photo of such a brave and strong girl. Sending love, warmth, and healing on this rainy day. xo
Thinking of you all and hope Carly is feeling better.
Sending love and strength to Carly today from Canada... xoxo Nuwie
Sending lots of love and good thoughts your way. Feel better Carly.
Love- Nikkie and Ryan
thinking of you 3 and sending lots of love, strength and healthy thoughts. love you guys- xo
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