We have all been adjusting to life back at home after an amazing trip together. (Here is a link to trip photos.) In the end we drove over 2,800 miles, with some great stops all along the way. Carly did great for the majority of the trip, and we were thrilled that she made it all three weeks without an issue that would force us to fly home early. She has continued to have a few seizures each day, so after our return we increased her seizure medication which seems to have helped a bit but the seizures have not completely stopped. Carly is also showing a few other signs that this shunt may be starting to become obstructed, so it is possible that a malfunctioning shunt could be contributing to her seizures. As usual, time will tell and we will keep a close eye on Carly's symptoms this week to determine if she will need a shunt revision.
With May quickly approaching it is nearing time for that annual Bay Area Brain Tumor Walk. We will be walking in Golden Gate Park on May 5 to raise money for brain tumor research. Team Carly raised over $14,000 last year, with support from all over the world. It is amazing to have that type of support, and it helps fund such important work. There are researchers out there that may be closing in on new treatment options, but their work relies on funding from groups like the National Brain Tumor Society. I am hopeful that the day will come that a family given a diagnosis like we were will have treatment options that are fast, painless and without side effects or long term damage. Please join us at the walk if you are in the San Francisco area, or donate to Team Carly to help make that a reality. Click here to learn more.
Thanks for your love and support!
Love, Brad
1 comment:
Road trip success! Lucky Kempton got the same cool experience his big sis got! So happy all went well and that you were all able to enjoy yourselves in good health. The Tumor Walk is an exciting time for all of us...along with the daily sending of good vibes, it's nice to contribute directly to the great research being done.
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