Carly’s recovery from her last shunt surgery has been going well, so we hit the road early last week for our road trip along the Gulf of Mexico. Carly did great for the five hour flight to Miami and Kemp did really well too. After a few days at Miami Beach we headed south to the keys and then up the gulf coast to near Sarasota, FL on Longboat Key. We are visiting my parents and overlapped with my brother and his family for one day so Carly and Kemp were able to spend time with their Milwaukee cousins. Carly had her first taste of key lime pie which was a big hit, and she seems really relaxed when she is lounging on a beach chair under an umbrella looking out over the Gulf. Overall she has had many good moments, mixed with some where she is not feeling as great. Over the last day or two she has been more sleepy and not feeling her best. Her seizures have not dissipated and it is hard to know if that is shunt related or if we need to increase her dose of seizure medication. We are hoping that the seizures will stabilize on their own over the next week and that Carly will be feeling better and better as we make our way toward Santa Fe, NM (our final destination before flying home.) It is great getting to spend this much time together as a family, and I’ll be sure to start posting pictures of the day if you’d like to see what Carly is up to. Some more pictures from the trip are posted here: Road Trip Photo Album
Love,
Brad
9 comments:
YES! Those photos were just fantastic! You guys look like you were meant to do that...chill and take in the good that life has to offer. I hope Carly's feeling her best for the rest of the trip. Thank you SO much for sharing the info and for the pics. What a treat! Love you guys!
looks like a great trip so far! Keep the updates coming.
xo
Jen L
Happiness is.....looking at this record of Kemp's Welcome Tour with his sister and awesome parents
Beautiful pictures and you all look so relaxed. Most of us don't take the time to meander around the country, and you guys are a true inspiration.
Glad to see everyone is doing so well!
Maya
So awesome! Glad you're having a great family adventure. Carly and Kemp are lucky to have such awesome parents! xo
It's wonderful that you're able to have this family trip together. Keep enjoying every moment that you can and live the good life.
Hugs and prayers for Carly and your family often. I hope to see you all on May 5th.
XO, Jackie
So glad you guys are able to have this family vacation together! Thanks for the updates and photos. Sending much love and ((HUGS)).
Loved all the pictures from the road trip! thanks for keeping us posted. It looked like such a nice time for you all!
hugs and kisses to the whole fam!,
Sheila and Keith
Miss Carly loves an adventure! She seems to thrive when traveling. Thrilled to see her beaming smile.
Love, Jeri
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