Sunday, April 29, 2012

Grateful For The Support

First, I want to thank everyone that has supported the Team Carly brain tumor walk team. We have raised close to $7,000 this year and over $30,000 over the last few years between east coast and west coast walking teams. That is truly inspirational. If you are planning to join the team as a walker and haven’t gotten to it yet, today is the last day for online walk registrations. You can still register at the walk itself, and donations to Team Carly can be made online up to the walk day next weekend (and even a few days after.)

Carly had a tough few days last week. She woke up uncomfortable several mornings, and on Thursday afternoon she was so uncomfortable that she couldn’t stop crying for several hours. After a sleepless night when she continued to be uncomfortable and inconsolable, we packed our hospital suitcase and headed up for what we thought would be several days in the hospital. Hoping to avoid that if at all possible we got in touch with Caroline, the nurse practitioner for neurosurgery, to see if we could investigate in the clinic rather than the ER. As she has many times before, Caroline came to the rescue again and helped right away with a shunt tap to eliminate a shunt infection as the problem. These initial results looked good, so the next thing we needed to investigate was a lung infection. Dr. Uba, Carly’s pediatrician was quick to order a chest x-ray and after only an hour of waiting at home he phoned to let us know that she had pneumonia and that she should start a course of antibiotics. She is doing significantly better now, although still tired. I am just amazed at her improvement and that we were able to avoid another admission to the hospital. We are very thankful for Caroline, Dr. Uba, our close proximity to UCSF and as always Team Carly!

Love, Brad

3 comments:

Mindy, Drew, Layla and Chloe said...

Here's wishing a very quick recovery for Carly. Feeling thankful that you, her nurse, and the team at the hospital are in tune to Carly and what she needs. And recovering at home sounds perfect.
Team Carly at its finest.
All good vibes your way...

lance said...

Sending healing vibes from NC! Wish we could walk with you but please know our hearts will be there in spirit. Wonderful news of clearer fluid and wishing Carly a speedy recovery from the pneumonia.
Much love and hugs,
Lance and Mark

Anonymous said...

Miss Carly, I was so happy that I was able to see you and your mommy and daddy for a few minutes on Saturday. I'm even happier to learn that you were able to avoid the hospital this week. You are always in my thoughts and prayers. Hugs sweet warrior princess. XOXO.