Monday, March 23, 2009

Bath Time

Carly still isn't feeling great, but she did enjoy her bath over the weekend. She may not have a lot of hair on her noggin, but she loves a good sudsing!

Today we spoke with Dr. Gupta and discussed the plan for the next surgery. Because Carly's tumor is growing so quickly (a rare thing for a craniophryngioma) he thinks that her best chance at a cure is total surgical resection. This is the consensus from all of the surgeons that we spoke with, so we feel comfortable this is the best choice for her. What this means is that he will be pretty aggressive in trying to remove all of the tumor, and given all of the critical structures that the tumor is near it is something that only a highly skilled neurosurgeon can do. This will be the biggest and most difficult surgery that Carly has had and he expects that it could take as long as her first tumor surgery (15 hours.) The date is still not set but at the latest it will be next Friday, April 3. Carly didn't have the best luck with her various shunt revisions needing many surgeries in a few months, but we are thinking that is because she didn't want to waste any good luck on a little shunt surgery. She's been saving up her luck and combined with the love and prayers from of all you there is nothing but good times around the bend.

Love, Brad

12 comments:

Anonymous said...

Sending loving vibes of strength and courage from the East side. This next surgery will be the road to becoming tumor free. Keep smiling, Carly, Brad and Christa, we're cheering for you!

Love,
Lance and Mark

The Hunts said...

I am sure that it frightening to have such a long surgery lying ahead. I pray that Dr. G gets all of that pesky tumor and Carly continues to touch peoples hearts. I'm pryaing and pulling for you all. Thanks for taking the time you have to keep us updated. We talk, think, and pray for each of you often.

Rob

Anonymous said...

that picture is so precious. we are also sending love your way all the time. though this must be an incredibly trying time, it's good to know you have great doctors and a little girl who is remarkably tough and resilient. You three are in our thoughts and prayers everyday,
Sheila & Keith

T-Rex said...

You can do it, Carly! You are such a strong little girl with an amazing spirit. Thanks for keeping us updated, Brad. Sending lots of love and strength to all three of you! Let us know when the surgery gets scheduled. Love ya. ~tina

Lani said...

i just know this last surgery is going to be it. i am feeling lots of positivity today and i just know it has to go this way for you guys.
she is so adorable, looking a lot like christa lately!!
miss you guys like crazy.
xo
Lani & Chris

NicciN said...

Sending much love, healing, prayers and strength for all of you. I am keeping the vision of a healthy, pain and tumor free Carly in the center of my mind.

Anonymous said...

Thank you so much for all of the updates and adorable pictures of Carly. It makes me so sad that Carly has to go through all of this, but she is so lucky to have such wonderful parents and family support. I know that she is a remarkable little girl and that she won't let this tumor get in the way of a long and happy life. I am always thinking of you guys and sending positive, healing thoughts your way.
Love,
Stephanie Chan

Anonymous said...

That tumor is no match for all of the love coming your way! We'll be keeping our eyes peeled for the surgery date. We're here for whatever you need!

Gal said...

Good times indeed! I am so rooting for Carly, and for Dr. Gupta's skill and a very successful surgery. Spring is a time of great hope and possibility, with so much blossoming all over the city. Take in all that freshness and promise, Carly, and all the love coming your way. And Brad and Christa - if there is anything you need, please ask. Still ready to make that lasagna... :)

Gal said...

PS. More abundant prayers have been requested for Carly on my blog in the prayer request section at the bottom. :)

JerseyGirl said...

Thanks as always for the update(s). That's an adorable picture of Carly! I wish she was feeling better but I am feeling good about the tumor removal. Carly is going to beat this. She is surrounded by love. Continuing to envision a tumor-free Carly.
((HUGS))

Anonymous said...

hey Nelsons,
just wanted you to know that I'm thinking of you and i hope that everyones spirits are up!

with love from Ann Arbor,
Jamo