The last few weeks haven't been as peaceful as we had hoped. Carly's shunt seems to be working because her fontanel remains sunken for most of the day, but every morning she has a round of crying that we expect is from increased cranial pressure. Fortunately the pressure drops later in the day, but Carly is clearly not feeling great most of the time.
We were expecting to meet with Dr. Gupta yesterday to discuss the specifics of the upcoming surgery, but unfortunately he was sick and we had to postpone until Monday. Regardless of the outcome of our meeting, it is clear that Carly's surgery will need to be moved up from the previously scheduled date of April 8. All of these details should be set on Monday, in the meantime Carly is getting a lot of cuddling.
Love, Brad
12 comments:
i'm so sorry. we'll keep sending the love & thoughts out to you guys.
xo
Lani & Chris
Hang in there guys. Lot's of love and hugs.
- Cathy and Matt
Hugs and love from the Sunset!
We wish our arms were long enough to reach fom Indy to San Fracisco so we could hug all of you.
Love,
Greg and Gail
Sorry for the bad typing! I am recovering from shoulder surgery and I can only use my left hand. I still can use my eyes and brain but I didn't proofread our comment.
Gail
Hi Guys, send love and prayers from Brooklyn.
love,
J Craemer
sending that should have said. i cant blame that on surgery either
Keep pluggin away at this! I can only imagine how weary you all must be at this point. I pray that each of you will be lifted up and stronger for the next wall you must knock down. You are amazing and have such strong hearts. Keep the faith!!!
Rob
hang in there, will be good to see Dr. Gupta and get some clarity on the next date. love and giant hugs,
Becca and Brian
Sorry to hear Carly's having a rough time, we're sending our support and love. Waiting to hear Dr. Gupta's next plans.
Love,
Savannah, Tim and Evan
so sorry Carly's not feeling well -- it must be so tough on everyone. you and Christa are doing such a great job helping your baby through this. We continue visualizing easier times for all of you and sending prayers and good thoughts your way,
Sheila & Keith
Sending lots of love and healing thoughts to Carly and to you both. She will get through this, hopefully very soon.
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