Well, we knew that Carly wasn't feeling well but we were hoping to avoid the hospital until next week. Unfortunately her body had different plans. Carly started being particularly lethargic on Monday and during the night she started to refuse to eat which is very unlike her. Because of her issues with sodium regulation she cannot go without eating for long so we had to bring her into the emergency room yesterday. The neurosurgery team checked the function of her shunt and ruled out any issues related to it. They also ran some blood labs, primarily to check Carly's sodium level, and while the sodium level was good the calcium level was dangerously high. The endocrinology team isn't sure why this happened as it has never been an issue for Carly in the past, (they actually said that they have never seen anything like with with any craniopharyngioma patient) but she clearly needed to be admitted to get her calcium back to a normal level. She is getting IV fluids to help flush out the calcium and it is already trending in the right direction. Her tumor surgery is still scheduled for late next week, and we are hopeful that the calcium issue will get resolved in the next few days so we can get home to rest up for that.
Love, Brad
16 comments:
Carly will thank you later for your being so "on top of it" and for living just a few blocks from the hospital. Her life is truly in the BEST hands. We pray for strength for the next surgery....D
You are great communicator on Carly's temperment. There is no question you read and respond to her needs without her saying anything to you. Great parents!!! Tough one on the calcium levels. I hope they are able to regulate them soon and she feels her way back to normal.
Rob
Sending lots of love to sweet Carly, let me know if you need anything. Love, Jane, chuck & sammy
love you guys
xo
thinking of you all...bob
Thinking of guys...I hope this gets resolved soon and that this hospital stay is short so you can go home to rest up! extra hugs and kisses to carly.
With you in thoughts, as usual... and admiring your day to day strengh, Cécile
We hope that Carly feels better once her "lytes" are back to normal.Many,Many prayers are coming to all of you...more strength, more patience and more love.
Jenny
you guys do an amazing job in handling every situation and always doing what's best for Carly. we are all inspired by seeing how you are stepping up to each challenge, and of course by Carly for being so tough. Sending you prayers for continued strength and tons of love for your precious baby,
Sheila & Keith
Thinking of you, especially Carly. Sending lots of love.
After all of this, we are sure her teen years will be a breeze.
Greg and Gail
Sending my best positive energy to all three of you. It is heart wrenching to comprehend the experience each of you is going through and I am amazed how strong you are to be getting through it so well.
Love is, truly, the best medicine.
Christopher
sending love as always from berkeley, and positive thoughts for the upcoming surgery.
love brian and becca
Your strength and awareness continue to amaze and inspire me. Much love.
Always thinking of you! Hope to make a trip to see you soon. Lots of Love, Matt and Denise
peaceful, restful, and painless thoughts are being sent from NYC. Think a your family often.
xoxoxo
julia
Post a Comment