It's been an eventful few days as we try to unravel the most recent Carly mysteries. The night before her belly tap, Carly spiked a fever of 104 degrees which was concerning. With a stress dose of hydrocortisone, Tylenol and cold washcloths we were able to get it back to a normal range, but we were up every hour or so through the night to make sure the fever didn't return. Her tap on Thursday went smoothly, and they removed almost 500 mL of fluid once again. Cultures of the CSF from the tap have not shown any signs of infection yet, so it looks like she may be in the clear with this potential complication.
These recent issues have knocked Carly's electrolyte levels out of whack, leading to many blood labs and questions from the endocrinology team over the last few days. They wanted to admit her to the hospital last night and again today to closely monitor these levels but we talked them out of it, promising to take her in for another blood lab tomorrow. Carly is scheduled to have her third shunt revision surgery with Dr. Gupta on Tuesday and he will likely replace all of the shunt hardware with hypo-allergenic versions, and the shunt drain will be routed directly into a major artery, rather than her belly. This will allow her belly to recover from its inflammation and hopefully give Carly some time of uneventful peace and quiet.
Love, Brad
3 comments:
Keeping the thoughts and wishes strong and healthy for you, Miss Carly! I'm sure you are charming all the doctors and nurses. Take care of all of you!
Baci,
Susan
Brad & Crista...I think about and pray for you and Carly often...You are truly amazing parents! Carly is so strong & determined to get through this most difficult start to her life's long journey ahead. Your unbridled love and tender caring for her is exactly what will allow her to eventually be ready and able to grow up to be all she can & wants to be in life. God bless you for the strength and resolve you've shown. Thanks for the blog keeping us abreast of the ups & downs. Love, - Jack*
Sending you love and healing energy today and every day. Carly is an inspiration to anyone who knows her, and even some who don't. Her parents are pretty incredible too. Love you guys!!
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