Carly continues to do well, smiling a lot and eating a lot of new solid foods. She particularly likes oven roasted sweet potatoes and high fat Greek yogurt with some fresh fruit. Her therapy has been focusing on helping her regain normal use of her right arm, and while she still has a way to go we have definitely seen improvements over the last week.
On the down side, each night around 3am Carly has a half hour session of screaming and it is clear that something is hurting her. We had been thinking that it was teething, but in the last few days it is looking like it may have something to do with her shunt. We took her up for an ultrasound check today and they found that there is excess fluid in her belly (where the shunt drains.) This could indicate that she has an infection or an allergic reaction to the shunt itself so they tapped the shunt (like taking blood, but the needle goes into the shunt instead of a vein) to get some fluid for testing. The initial results do not show an infection, but they will need to continue to culture it for seven days to make sure. Fortunately Carly is feeling well for the other twenty three and a half hours of the day and we're hopeful that the solution to this most recent issue will be an easy one for her.
Love, Brad
9 comments:
Great to hear she is making progress and that the majority of the day is a happy one.
Rob
What an incredibly brave little girl she is, and an incredibly loving and positive family you are. I am inspired and present reading your updates. I learned about you guys through Chris and Lani's blog, and live here in SF too. Sending love and prayers.
love to hear she is smiling lots and eating well...sweet potatoes are a big hit here too. we are keeping our fingers crossed for an easy solution to her 3am pain. sending healing loving thoughts to your little sweetie,
Sheila
Two steps up, a half-step back...but at least Carly is making progress in the right direction.
Stay positive, my friends!!
Love ya,
robin
I have been reading your blog since October when my old friend Chris (elmcitydad) directed me to you. You have a beautiful little girl who teaches me everyday about being brave and as a parent myself I am amazed by your love and togetherness. Thank you for sharing! I am praying for your family and especially for your sweet girl, Carly.
Lyn
West Hartford, CT
Go Team Nelson! Love you guys very much and sending all of my positive energy your way today. BIG HUGS!
Carly is an amazing little girl and you are both amazing parents. I hope that there is a simple and quick resolution to the current problem. I am sending positive thoughts & healing energy to you all!
Hello from India. Am sending all good vibes and prayers for quick healing.Team Nelson always seems to be on top of it...D
Thank you so much for the frequent updates. I am so sorry to hear that Carly is experiencing pain. Even a half hour is too much for such a sweet girl. But I know that she is very strong and such a good little trooper. I am thinking of you guys and praying for her full recovery.
Stephanie Chan
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