Stir Crazy at UCSF

Today was a beautiful day in San Francisco and we enjoyed watching the Blue Angels flying over the bay and city from our room. Carly seemed to enjoy her first real breath of fresh air on the 6th floor patio and she got in several rounds of lap time and play time with us and both of her grandmothers.

After review by the tumor board, the decision for the next step has been made. We will be going home early next week once they have a good handle on her hormone levels and how to properly medicate to keep her in the right range. This will mean giving her several hormones on a daily basis, but with them and with so much tumor removed they expect her development to really start to take off. Her development will be closely monitored and every three months she will get an MRI to evaluate the size of the remaining tumor. If she develops as well as we expect and the tumor does not grow then they will continue to hold off on a second surgery. At some point some action will need to be taken on the remaining tumor, it is just not yet known if that will be in a few months or more than a year down the road.

Again we have to tell you how much we appreciate all the love, support, and strength you sent to Carly and us during this long week. I am convinced it made this time easier on us and that it gave Carly the extra boost she needed to get this far. She will continue to need your help as she moves on to the next step on her way to full recovery and I know that you are all there for her. Thank you so much.

Love, Brad