It has not been an easy week for Carly. She has continued to be very uncomfortable and restless, only sleeping well for two out of the last seven nights. It is a tricky puzzle to figure out, which is saying a lot for the princess of tricky puzzles. One possibility is that she is having trouble adjusting to her lower cranial pressure now that her shunt is working. While the pressure may be appropriate, it could be that she became accustom to a higher pressure when she had a clogged shunt. After giving her a week to adjust without any success, neurosurgery adjusted the shunt up one setting to see if that can give her some relief. They are also running blood and urine tests to rule out an infection and preliminary results are looking clear. She could definitely use a little boost of strength from Team Carly as she makes her way past this most recent hurdle. Thanks for keeping her in your thoughts.
Love, Brad
14 comments:
Boost! Boost! Sending much love your way!
Just a note to say I'm thinking of you guys this weekend! Carly seems like the sweetest little girl, and you and Christa are amazing, devoted parents!
Give me a C...an A...an R...an L..a Y! You're a rock star, Carly! Hope you sleep well tonight!
Love,
Susan
big boost of strength heading carly's way!! i hope she's just adjusting to the new pressure levels and that it all gets on track to feeling good soon! xoxo
Thinking of you guys and hoping Carly gets some rest soon!!!!
I hope everyone gets some much needed sleep tonight!
Sending healing and soothing energy towards the three of you.
-Sue
sending love...xoxoxo
abbey
Sending many boosts of love, healing, and comfort for Carly and her amazing parents. Thinking of you all. xo
We are sending our love and prayers
constantly, and you never leave our
thoughts- all of you are thought
of you, with much love your way.
WE have not sent enough, love , but think about you all the time.
Love, Hal, Linda, & John
Sending so much love and strength and hope for a more comfortable Carly! ((HUGS))
Sending lots of positive thoughts for rest and comfort for Carly.
Thinking of you & sending healing thoughts your way. We hope this part of the puzzle gets solved soon.
Love,
Laurel & Guido
Sending love your way...I hope this puzzle resolves itself soon! --bob
We'll be blowing kisses as hard as we can in your direction. Hope you all feel it. MmmmmmWAH! MWAH! MWAH!
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