Late last week we had a few concerns that Carly's shunt may not be functioning. On Friday and Saturday Carly’s symptoms worsened, and after contacting the neurosurgeon on call we decided that she needed to have a shunt function study on Monday. During the study the images on the monitor tracking the radioactive isotopes that were injected into the shunt barely moved. This verified, as we had expected, that Carly’s shunt is clogged and not working properly. We knew this was a possibility when her cerebral spinal fluid protein content was very elevated over a month ago, and shunt number eight is on the way out.
Fortunately Carly has been feeling pretty good since Sunday and she has been looking around a lot and sharing some of her adorable smiles. She is scheduled for surgery to replace the shunt this Friday morning, and we can always bring her in sooner if she starts feeling worse. The most promising part of this is that Carly is able to do as well as she is without a properly functioning shunt. This could be an indictor that she may eventually be able to live shunt free, but only time will tell.
Love, Brad
8 comments:
I have a feeling that number nine will do the trick! Will be thinking of you guys this week!
Go little C!
Much love,
Robin
I am sending all positive vibes that after Shunt #9 Carly will be Shunt Free.
Good Energy to you all,
Matt
Man, Carly is one strong little girl. Of course I already knew that, but I am still constantly amazed by her strength, and by yours and Christa's. I'll be thinking about you all this week, and will be sending extra strong healing vibes Carly's way on Friday. Lots of love heading your way!
I eagerly await the good news of how well she's progressing when the next shunt comes. You're all so fortunate that modern day science is the miracle that it is. "Radioactive isotopes"?!?!? Amazing!!! Love to you all!
C'mon Number 9! Maybe Carly just really likes the Beatles? We'll be sending all of our love and positive thoughts your way! OXOXO
we'll light a candle for good luck on Friday morning. and we'll be sending you our prayers and love before, during, and after the surgery. She really is a tough little girl and it's sounds like very good news that she has been getting along well without a properly working shunt. She is amazing!
keep doing whatever you're doing Brad and Christa because you are both guiding your baby through this adversity and toward a brighter future. we are always thinking about you and sweet Carly and inspired by you three.
love you all!,
sheila and keith
sending lots of love and positive vibes for surgery tomorrow. love you all, was great to catch a few of carly's smiles the other day and see her checking out her surroundings. xo becca and brian
Number 9 and all will be fine!! Sending vibes of success and healing for this surgery.
Love and hugs,
Lance and Mark
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