The last week had a mix of ups and downs for Carly, but fortunately the last few days have been an upward trend. For much of the week Carly was really uncomfortable, with stretches of inconsolability. There was no clear reason for Carly's discomfort but fortunately that started to take a turn for the better on Saturday and she had a good Sunday too. Carly's shunt is definitely working, and her peritoneum is absorbing the CSF which is a big relief and a good sign that we may be able to put shunt problems behind us for a little while. On Saturday Carly started eating pureed solids and this morning Carly nursed for the first time since Christmas, both major steps forward. For nearly three weeks all of Carly's feeding have come through her NG tube, but if she keeps up her eating ways for another day we will finally be able to take out the NG tube! Carly has also smiled a few times over the last few days, including a really cute one right now as I type. We had not seen her smile since October 31st, so you can only imagine how heartwarming that has been for us to see. Hopefully all of these great steps over the last few days are just the beginning of good times ahead.
Love, Brad
16 comments:
Thanks for the update! Hoping the feedings continue to go well so Carly can get rid of the not so stupendous tube and start flashing her cute smile even more for you guys. Always thinking of you three. ((HUGS))
What wonderful news!We have been thinking about all of you and hoping that Carly would start feeling better soon.It's great to hear that she has started taking solids again.You go Carly!!
Love,
Jenny
YAY! Smiles!!! Man, it felt good just READING about a smile...I can't imagine getting to witness it. Great sign!
Big love to the three of you!
Crosses fingers and toes that the shunt continues to work, We all need more Carly smiles!
Awww YAY for nursing and YAY for smiling! It's so good to hear that Carly is feeling well enough to show some happiness and I know Christa must've loved being able to nurse Carly again. Hoping this is IT...
YES, hope this trend continues and you get lots more smiles. She looks so squeezable and cuddly. Sending her and you two lots of love all the time,
Sheila and Keith
Carly must have listened to Dr. Rosenthal. Smart cookie!!! Happy to hear the good news.
Oh I just love that sweet and sly Carly smile... like she's keeping a secret that's really, really funny and if we're good, she might let us in on it. :) Keep up the good work, little lady. Love you.
smiling is my favorite.
and carly sure does have a cute one! :)
glad to hear the shunt is working, that carly seems to be getting more comfortable, and that she's eating! i hope all of these things continue as the three of you move forward and heal. xoxo
Team Carly alllllllll the way!!!
Carrie & Rick
I'm so glad to hear that Ms. Carly is smiling and feeling a bit better. I think of the three of you constantly.
Hugs,
Jackie Oswold
good news, i hope these last few days have been a steady upward climb.
can't wait to see you guys! xo
Keep smiling sunshine!
Hearing that carly was smiling is making me smile from ear to ear! Hope all the strides keep coming- she is amazing. Miss you guys, hope to see you soon. xoxo
MORE SMILES!! :)
thinking of you always, and sending'
much love your way from Indiana.
Love, Hal, Linda & John
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