Wednesday, October 7, 2009

Working Under The Harvest Moon

Carly's week has been ok. Last week she was fussy for much of the day, but with several teeth coming through, a little constipation, and some seizures, who could blame her. Two out of those three have eased up for her, but she is continuing to have occasional seizures. She started taking her anti-seizure medication last Monday, and these medications are typically started at very low doses and then increased every four-six days until an effective dose is found. At this point Carly is still having 2-3 seizures a day and they can last anywhere from 2-10 minutes. It can often take several weeks to find the right dose, so we will continue until the seizures finally stop or we reach her dosage maximum. If the current medication does not stop her seizures, there are others to try. It is very important that we get these seizures under control as quickly as possible though, because if they go unchecked they can escalate to more critical seizures and her neuro-development will likely plateau as she continues to have them.

Carly is doing well otherwise, and she seems to be looking around more and more each day and loves to test out her new teeth by chewing on her stuffed carrot. It is clear that a lot is going on up in her head right now and we will continue to surround her with love to help get her to the next step in her recovery. You can help us by continuing to envision Carly as the perfect, healthy little girl that is her true self.

Love, Brad

14 comments:

bridget keenan mcelroy said...

Carly is a perfect little girl and lucky to have the "perfect" parents. She is always on our minds. We send love and healthy thoughts her way.

Bridget McElroy

Joanne Choi said...

My friend and I have lifted up your beautiful girl in prayer...may you receive healing and peace.

Gal said...

Consider it done. What I see is so beautiful. :)

Paige said...

Picturing a perfect, healthy, vibrant Carly. xo

lance said...

Seeing nothing but a beautiful, healthy little girl who is ready to take on the world.

Hugs,
Lance and Mark

Marybeth said...

Sending love and visualizing a healthy, happy, peaceful Carly and family.

Anonymous said...

We just had a long lunch with Sue ans Phil, reconnecting after a long time with friends of the heart of 50 years, catching up. We talked a lot about you and Carly. I recalled how Sue willed Andy to develop his motor skills and how you both have used this kind of will to help Carly. This is an inspiration! I appreciate the idea of visualizing Carly as whole as we pray for her.Love frpm Shirley and Dave

Anonymous said...

visualizing health and peace for your amazing family.

JerseyGirl said...

Visualizing a healthy brain for Carly! Sending love your way. (((HUGS)))

Mindy, Drew, Layla and Chloe said...

Here come the vibes. Feel them, Carly, and run with them. They are strong and they want you to ride with them. We love you.

Anonymous said...

"Because Im still in love with you
I want to see you dance again
Because Im still in love with you
On this harvest moon."
-Neil Young

Gal said...

Thinking of you guys and sending lots of love. Hoping Carly continues to do better each day. Miss you. Please give her a kiss for me. :)

Anonymous said...

Trying to come up with an anagram for Carly, I got this optimistic phrase:

CGN: REALLY NO CARES

We hope that predicts her future.

Love, Greg and Gail

Heather and Seth said...

We'll be watching those trees for some more wind power and visualizing a healthy brain and a healthy Carly!