Tuesday, September 3, 2013

Overdue Update

Since we last wrote Carly has had her most stable run to date. She went just over 4 months without a stay in the hospital. It was a good break for all of us, and one for which we are very thankful. At the beginning of August she underwent her 41st shunt revision and has been holding steady since. We were able to take a trip to Michigan for almost 2 weeks to spend time with Brad's parents, siblings, and their families.

Today Carly is having a gamma knife radiation treatment on the tumor recurrence that we have been monitoring. The tumor is small, but has been growing slowly. We want to treat it now, before it gets to a size beyond the scope of gamma knife radiosurgery. If everything goes well, Carly will get to go home tonight after the 6 hour procedure.

Carly has been smiling quite a bit recently. She, like the rest of us, loved all the time she spent outside at Douglas Lake.

Lots of love,
Christa

10 comments:

Jen Wagner said...

Thanks for the update! Our thoughts are with Carly, sending lots of love your way. xoxo

Tutu said...

The only thing that could top the days with you on Douglas Lake would be Carly going home on the same day as her gamma knife treatment. She, and you, inspire all of us.

Anonymous said...

I've been thinking about you guys a lot and hoping all is well. Carly looks radiant! Sending good thoughts for the gamma knife treatment and quick recovery!

JerseyGirl said...

Thank you so much for the update! I think of Carly all the time and check the website frequently. Always sending love and goodvibes your way.

((HUGS))

Paige said...

Yay! So happy to read this update. I hope the surgery went well and that sweet Carly is recovering happily. What a beauty with that gorgeous hair and smile. She's getting so big! Much love to you all!

Michele Rebbeck said...

She looks so much older in the new picture. Hopefully she'll have another long run with #41.

Love you guys,

robin said...

Lots of love to you guys and little Carly!

Anonymous said...

We are really happy to hear about this long stretch... And are also thinking about you often... Lots of love! Cecile and Paul Cornillon

Anonymous said...

It was nice to see you and your family enjoying the lake this summer. It is always fun to see happy people on the docks!! carly's picture is adorable and it is nice to know things are better for you all right now. best wishes to you all. Kay Springer

sheila said...

Carly is always in our thoughts and prayers. Glad to hear you had a nice long run without a hospital stay during the summer and that you spent some quality time away with family and outside. Hoping the gamma knife treatment went well. love to you guys!! (She looks so big and beautiful in that picture!)