We have found ourselves back in the hospital again. Carly had a few decent days after her shunt surgery last week, but she continued to have what looked a bit like a seizure throughout most days. She became less interested in eating over the weekend, and her oxygen saturation levels were unusually low. We had to start oxygen support at home for the first time ever. Yesterday she had a period when her heart rate was very low, and a larger seizure looking episode so we knew we would need to come to the hospital today.
Carly spent most of the day here hooked up to an EEG to see if her episodes really are seizures. This monitoring will continue over night, while Carly also gets fluids and antibiotics to help treat a lingering UTI as well as an upper respiratory infection. Tomorrow we will try to determine if she should have a change in her seizure medications, and if any changes should be made to the shunt opening pressure. Hopefully the plan will have Carly feeling better soon. Thanks for the love and prayers that you have been sending her way.