We have found ourselves back in the hospital again. Carly had a few decent days after her shunt surgery last week, but she continued to have what looked a bit like a seizure throughout most days. She became less interested in eating over the weekend, and her oxygen saturation levels were unusually low. We had to start oxygen support at home for the first time ever. Yesterday she had a period when her heart rate was very low, and a larger seizure looking episode so we knew we would need to come to the hospital today.
Carly spent most of the day here hooked up to an EEG to see if her episodes really are seizures. This monitoring will continue over night, while Carly also gets fluids and antibiotics to help treat a lingering UTI as well as an upper respiratory infection. Tomorrow we will try to determine if she should have a change in her seizure medications, and if any changes should be made to the shunt opening pressure. Hopefully the plan will have Carly feeling better soon. Thanks for the love and prayers that you have been sending her way.
Love, Brad
10 comments:
As always....love is shooting yours and Carly's way. We hope everything is on the right path and that you're all feeling the love.
Sending lots of love and positive energy your way.
Lance and Mark
You guys have been in my prayers! Hope your sweet angel Carly starts feeling better soon.
Sending love and light to you guys. Picturing a healthy, vibrant Carly tonight.
Lots of love coming your way this day.
Hoping that Carly is starting to feel better. We are sending lots of love and prayers your way!
Thinking of you all and hoping Carly is feeling better. ((HUGS))
We are always thinking of all of you and sending positive energy.
Love, Hal and Linda
Always in our thoughts. Sending all of our love to each of you. Team Carly!!
The Rohrs
Love love love
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