Today our sweet little c turns 4. For most of that time she has been fighting hard, first against the tumor and now against a variety of complications that are keeping her from feeling her best. She is inspiring to us, and many others, and through it all she continues to bring the best out of people that know her.
More than anything I wanted her to have a normal birthday, feeling well enough to enjoy a few bites of cake and smile at the crinkling of some wrapping paper. Unfortunately, her most recent shunt has slowly started to become obstructed and yesterday it finally stopped working all together. Carly will be heading into the OR pretty soon today for a shunt revision to replace the faulty components once again. The good news is that the protein continues to get a little lower, and the other cell counts in her CSF are looking better than they have in a very long time. We are still hopeful that this could indicate that things are starting to heal, and soon she will have protein levels that stop interfering with the flow through the shunt. While it is not how any of us wanted her to spend her birthday, if she is nearing the end of this surgery cycle that is the best present we could ask for.
Love, Brad
10 comments:
Happy Birthday to the little power house, Carly! Oh Carly....you've brought us all years of wonder....amazed at the love you've generated and the strength that has inspired us. Here's to getting those levels even lower and enjoying that birthday cake as soon as possible. Love love love to you all!
*~*Happy Birthday lil c!*~* Looooove you! Sending working birthday shunt wishes. xoxo
Happy birthday to darling Carly!! I hope today's procedure goes smoothly and sweet Carly can feel better soon. That's great the numbers are showing signs of improvement! Sending hugs to you all, especially the birthday girl.
Happy Birthday to Carly! So happy that the numbers are improving. That is a good present.
xo
Jen L
Happy birthday sweet Carly! Happy to hear the levels are continuing to lower. Always keeping you in my thoughts. ((HUGS))
Happy Birthday Carly!! Glad to hear that those numbers are still coming down. Keep up the good work, little Wonder Woman!
Happy Birthday, Carly!
It was a pleasure meeting you the other day. I hope your proteins continue to drop towards small numbers!
Happy Birthday to the amazing Carly! Sev sends a big kiss to his birthday buddy and we all send lots of love and healing vibes to you, hoping your protein levels drop even more and your shunt is soon flowing freely. xo
Happy happy birthday Carly! Hoping for a working shunt this year and going forward! xoxo
happy birthday carly! hope this last shunt revision went well and Carly has gotten to eat some cake. glad to hear the good news about the dropping protein levels. We are sending prayers and love your way.
--sheila and keith
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