Carly's second night was not as restful as night one. As bedtime approached we could tell that she was feeling irritated, and this continued through the night. It is something we have seen before, Carly rocks her head and moves her hand around a lot and to keep her from crying you need to hold her hand and pat her side. We had to keep this up constantly through the night and in the end we all got about an hour of sleep total.
Carly was more comfortable early today, but in the late afternoon she started to get agitated again. Around five this evening CSF started to leak out of the incision near the EVD, something that isn't supposed to happen. The neurosurgery resident came by and was able to get CSF to flow through the EVD again, but it seems like it might have a partial clog. We are keeping our eye on it overnight, and hopefully it was a one time incident. Carly is still needing tending now to be comfortable, but hopefully she can get more comfortable soon so we can all get some rest.
Love, Brad
5 comments:
Hoping for a smooth and comfortable night for your sweet Carly. And no more quakes! xo
I'm so sorry what a hard night sweet Carly had...I hope Carly feels better today. It'd be great if you guys could catch up on sleep I know, but for now just know that we're all thinking of you and sending healing, restorative thoughts.
so sorry to hear about the uncomfortable night. she is such a tough little girl and you are such wonderful parents...you all deserve a good sleep now. sending you lots of love and wishes for rest and relief.
Sending Carly and ya'll positive vibes for restful healing.
Much love and hugs,
Lance and Mark
Thinking and sending off thoughts of comfort. Great to know she has such caring parents.
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