Shine A Light

Carly's last EEG confirmed that her seizure medication was not helping. She started her new medication on Thursday which will taper up over a month as her first medication is tapered down. It will still take some time before we can tell if the new medication is helping, but her seizures have gone from around seven a day to three/four a day since the change so things are looking promising.

The day the new medication began was also a big day as Christa, Carly and I hopped in the car and headed south to Indio, CA for Festival 8, the first ever Phish festival on the west coast. For those who aren't familiar with Phish, they are one of our favorite bands and the link that connected us with many of the great friends in our lives. We thought that three days in the sun with many loved ones and great music would be a good thing for all three of us and we were not disappointed.

Phish played a total of eights sets of music over the course of the weekend and Carly made it to all of them. Nothing fills the air with good energy like tens of thousands of happy people dancing the night away, and I really think that this could only help Carly with her healing. All of our friends dressed up for Halloween, many of us as antelopes in honor of the Phish song "Run Like and Antelope" and Carly was the cutest chicken I have ever seen in a costume that Christa made for her. As the band covered the Rolling Stones album Exile On Main Street during the second set on Halloween the lyrics for "Shine A Light" really struck a cord:

"May the good Lord shine a light on you,
Make every song you sing your favorite tune.
May the good Lord shine a light on you,
Warm like the evening sun."

Our days can still be a roller coaster ride but times like these surrounded by so many of our Team Carly family shows how many great moments there are in life, and how many great memories Carly has to come.

Love, Brad