Carly has continued on her path of slow but steady progress over the last few weeks. Most importantly, she has steered clear of the hospital and all of her blood lab results continue to be normal. She has started to look at Christa and I when we talk to her which is something that she has rarely ever done before and on several occasions she has welcomed me home from work with a big smile. It really doesn't get any better than that.Although things are going in the right direction, Carly is still keeping us on our toes. During a trip to Lake Tahoe last weekend Carly spiked a little fever which is a lot more critical for her than a typical kid. Because Carly doesn't have a pituitary gland she needs increased amounts of hyrdocortisone administered anytime her body is under stress, including a fever. These issues were a contributing factor to her last trip to the hospital so needless to say we were a bit nervous as we waited to see if the fever would resolve itself with hydrocortisone, Tylenol and a cold washcloth on her head. Fortunately she started feeling better and Christa and I were able to breathe a big sigh of relief. We will probably need to deal with events like this for years to come, but we take comfort knowing that Carly is always surrounded by the love from all of you, keeping her safe and guiding her on her road to recovery .
Love, Brad
16 comments:
What a way to start the day...we have dreamed of smiles like this.
Oh Carly, you are on your way ! baby steps but in the right direction. This post will put a big smile on all of our faces too.
Love to you and your parents.
Bridget McElroy
I am always happy to read that Carly is doing well. She is a little miracle! xo, Olivia
Carly is so sweet and it is so wonderful to hear that she is smiling more and able to connect with you both more. It sure isn't an easy road for any of you, but I am so glad that it's a road leading to recovery & lots of smiles and happy times to come.
Love to see that smiling face!
Christa and Brad,
I'm continuously amazed at how brave and strong you and your beautiful baby girl are.
I'm sending you my best until the day that we run into each other at UCSF (or at Gap apparently.)
I think of you often,
Jackie
The fact that your posts are further apart is a good sign in and of itself, Brad. So glad Carly is on the road to recovery. I'm happy to read that she loved camping. Our kids did from day one too. Keep on going outdoors, it's good for the body and the soul.
Take good care,
Stacy
Look at Carly! SO happy! SO cute! Such chubby squeezable cheeks! We're happy she's on the right path and are thrilled that you are enjoying the precious moments in life together.
Love to see that beautiful smile! Looking forward to seeing it in person.
Love,
Allie
I am so happy you guys made it up to the Lake. I was with you in spirit at the Bridgetender!
Kellie
Aww so cute! :) Love the smiling carly pic. Glad to hear things are going well w/just minor bumps in the road. Hoping the bumps are always minor. Thanks for the update.
What a pretty face today. Carly's eyes are smiling and curious. So happy to see your good news. Keep writing, Brad, you are very good at this. I appreciate you letting us know how Carly is doing and I love to read your sensitive thoughts along the way. Have a happy day today.
Kay Springer .
Great to read that Carly is generally improving and feeling well!
It was nice to re-meet you Brad & Christa at Shoreline.
:)
Heather
great picture -- great news about the steady recovery. Always thinking about you guys and praying for continued progress.
lots of love,
sheila and keith
What a beauty, her grin is priceless. Loving the steady progress and sending many healing vibes jam-packed with love.
wow, an intense year! I am still catching up on the blog since i have not seen the likes of the two of you (now 3 of course) since 2000? Was caught up at the gorge and was given the blog by anne! All of my love goes out to your family! Carly will to be a Marathon dancer some day!!! xoxoxoxoxoxoxoxoxoxo Keely
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