Back On The Train

Carly has had mostly good days this week which is just what we are looking for. Her stomach seems to bother her occasionally and three new teeth have broken through the skin over the last few days which has kept things interesting. Her nights have been pretty amazing as she has slept for seven straight hours or more for four consecutive nights now. I don't think we have ever experienced that and it has helped us all catch up on some much needed sleep. Even when she does wake up in the morning she seems completely content to just look around the room from the comfort of her bed which is what we usually find her doing each morning.

Carly had an impromptu checkup with neurosurgery yesterday to evaluate her shunt setting. The shunt has a magnetic valve in it that allows for adjustment of the flow rate by holding a magnet up to her skin and turning the resistance up or down. Her fontanel is very sunken now which means that the excess fluid is being drained very easily so the shunt resistance was turned up one level to try and get a bit closer to a natural drainage/absorption setting. They were very encouraged by how good she looked and happy to hear how well she is doing with the taper from her medications. She should be able to get back to her physical therapy soon and hopefully she can make up for some lost time pretty quickly.

Love, Brad