We logged some serious hours at the UCSF hospital today, getting there at 9am and not leaving until after 6pm. We met with a wide range of doctors all trying to figure out what is bothering Carly. She had another round of blood tests and most of the results looked normal. Her sodium continues to be high, and we will continue to try to boost her fluid intake. The endocrine team has increased Carly's hydrocortisone dosage for a little while to see if this can help make her feel better. To completely rule out any neurological issues Carly's next MRI will be moved up, if possible they will try to fit it in tomorrow.
We have had to cancel our travel plans to visit my family in Michigan tomorrow which is disappointing, but we know that we will all celebrate Christmas together in spirit. We are thankful for all of the prayers and positive energy that everyone is sending our way. Right now our little angel is sleeping peacefully.
Love, Brad
5 comments:
I'm so sorry you guys had to cancel your holiday plans. We'll be thinking of you guys. We miss you.
peace, love and ((((HUGS))))
Sending all my love and energy to little c and her amazing parents. Hope to see you for in-person hugs very, very soon. -kim
Brad, Christa and Carly, We know how much you wanted to be in Michigan for Christmas. We will miss seeing you this week but look forward to when you can come. Merry Christmas to all of you - you are and always will be in our prayers. Give your little angel a big kiss for us. Dennis and Kathy
Brad, Christa and Carly, we continue to think of you and always send positive healing vibes out to sweet Carly. We wish you a Merry Christmas! ((HUGS)) Jennie & Jimmy
Hi Little Carly,
We left some oats going up our front steps that Santa's reindeer will find our house tonight. We'll leave instructions to your place, too. We're thinking of you on this holiday eve-- good luck on your MRI, though you're an old hand at this by now!
HoHoHo & mistletoe!
Hana & Zacky
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